Combating Autism Act (CAA) Appropriations and IACC Strategic Plan for Autism Research

The Combating Autism Act (S.843) was passed by the U.S. House of Representatives on Dec. 6, 2006, and by the U.S. Senate on Dec. 7, 2006. It was signed into law on Dec. 19, 2006, by President George W. Bush. The law is considered by some to be the most comprehensive piece of single-disease legislation ever passed by the United States Congress.


CAA News: 

Breakdown of CAA Authorized Levels vs. Appropriated Amounts: ($ in millions)

FISCAL YEAR 

HRSA

CDC

NIH

TOTAL
APPROPS.

CAA
RECOMMENDED

2007

20

15

93

128

147

2008

36.354

16.212

119

171.566

168

2009

42

20.4

123

185.4

189

2010

48

22.061

141

211.061

210

 

The President's FY 2010 Budget Includes $211 Million for Autism

Washington, DC (May 7, 2009) -- President Barack Obama released his FY 2010 budget today.  In it, the President has included $211 million for autism.  Specifically, included in the “Department of Health and Human Services: Fiscal Year 2010 Budget in Brief,” is the following autism-specific language:

“The President is committeed to providing an additional $1 billion over the next eight years to expand support for children, families, and communities affected by autism spectrum disorders (ASD). The FY 2010 Budget includes $211 million across HHS for ASD research, treatment, screening, surveillance, public awareness and supportive services.”

The HHS Budget in Brief’s NIH section devotes the following paragraph to autism:

“As part of a $211 million HHS-wide initiative that would invest an additional $1 billion over the next eight years in autism-related activities, the NIH budget includes $141 million in FY 2010 for research into the causes of an treatments for autism spectrum disorders (ASD). For NIH, this represents an increase of $19 million, or 16 percent above the estimated base FY 2009 level. NIH expects to use these funds to help implement the objectives of the Strategic Plan for ASD research, as developed by the Interagency Autism Coordinating Committee. These objectives include identifying biomarkers; improving ASD screening; establishing ASD registries; understanding genetic and environmental risk factors, as well as interactions between the immune and central nervous systems; and enhancing services that can help people with ASD across the lifespan.”

Specific line items in the President’s budget, including the HHS Budget in Brief and Appendix to the President’s Fiscal 2010 budget include:

  • Health Resources and Services Administration/Autism and Other Developmental Disorders (HRSA) - $48 million
  • National Institutes of Health (NIH) - $141 million
  • Centers for Disease Control (CDC) - estimated at $22 million

The Combating Autism Act authorizes funding for Fiscal 2010 at the following levels:

  • HRSA - $47 million
  • NIH -  $143.5 million
  • CDC - $19.5 million

Download a PDF copy of the FY 2010 HHS Budget in Brief

 

December 11 IACC Meeting (December 11, 2010)

IACC 2008 Summary of Advances in Autism Research Selects Autism Speaks' Funded Research - November 19, 2009

Interagency Autism Coordinating Committee (IACC) Releases Strategic Plan for Autism Spectrum Disorder Research - March 6, 2009 

President Obama Includes Funding For Autism In His 2010 Budget Proposal - February 26, 2009

Interagency Autism Coordinating Committee (IACC) Holds Meeting to Discuss the 2008 NIH Strategic Plan for Autism Research - February 6, 2009  

Summary from IACC Meeting to Finalize Strategic Plan for Autism Research - Autism Speaks Withdraws Support for the Strategic Plan for Autism Research  - January 15, 2009


Summary of the CAA Law:

Read the Text of the CAA law (Public Law 109-416)

  • The CAA authorizes $920 million in federal funding to fight autism through biomedical and environmental research, surveillance, awareness and early identification, over the next five years. This figure represents an increase of fifty percent increase in the Department of Health and Human Services spending on autism.

  • The CAA also identifies the Secretary of HHS as the lead agent for the federal response to autism, raising it to a cabinet-level priority for the first time. As a result of the CAA, HHS is directed to expand training opportunities to increase the number of sites for diagnosis, particularly in states that do not have them.

Breakdown of Fiscal Year 2009 CAA Spending:

Health Resources Services Administration (HRSA): $42 million 

Centers for Disease Control (CDC): $20.4 million

National Institutes of Health (NIH): $122 million

Total: $184.4 million  

Breakdown of Fiscal Year 2008 CAA Spending:

  • HRSA: $36.354 million ($1 million for the IACC)
    • Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Programs - LEND trains future leaders in a variety of disciplines to improve the health of children who have or are at risk of developing neurodevelopmental disabilities, or other similar conditions, such as autism.
    • Autism Intervention Research Network on Physical Health (AIR-P Network) - provides grants for research projects on interventions that have a direct impact on improving the physical health and well-being of children and adolescents with autism.
    • Autism Intervention Reseach Network on Behavioral Health (AIR-B Network) -  provides grants for research projects on behavioral interventions for individuals with autism.

  • Inter-Agency Coordinating Committee (IACC) - CAA's most significant impact is the reinstitution of the IACC, which coordinates all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorders.  Because of the increased authority and community representation stipulated in CAA, the first year of the IACC's work has resulted in an accounting of NIH autism research spending.
    • Strategic Plan for Autism Research: The IACC is in the final stages of a process to develope the Strategic Plan for Autism Research as mandated by the CAA.  The plan is comprised of six research areas and 35 research objectives.  If the IACC approves the recommended changes to the draft plan, then the plan will exceed the amounts authorized by CAA and recommends more than $1 billion in research objectives over the life of the plan. 

  • Centers for Disease Control and Prevention (CDC) - $16.212 million
    Learn the Signs. Act Early - Autism awareness campaign
    • Autism Developmental Disabilities Monitoring Program (ADDM) -  Surveillance program tracking the prevalence of autism in 10 states and six Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE) sites that conduct public health research on autism.
    • Study investigating the association between the MMR vaccine, gastrointestinal tract disorders, and autism.

       
  • National Institutes of Health - $114.5 million - Spending data will not be available until 2009. 


 

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