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Autism Speaks Joins Georgia Families in Praising Senate for Unanimously Approving Study Committee of Insurance Issue

Ava’s Law Remains Necessary to Change Insurance Law and End Healthcare Discrimination Against Children with Autism
 
ATLANTA, GA (March 12, 2009) -- Autism Speaks, the nation’s largest autism advocacy organization, today joined with families in Georgia to applaud State Senate President Pro Tem Tommie Williams (R-19) in obtaining a commitment from the Senate to establish a committee to study Ava’s Law, Senate Bill 161.This committee will be charged with examining the autism insurance reform issue and developing ways the state legislature can stop discrimination by insurance companies of Georgia’s children with autism.  Senator Williams was inspired to get involved in the issue of autism insurance reform by his four year old niece Ava, who has autism.  The Senator worked tirelessly as a cosponsor of Ava’s Law, and helped shepherd the bill through several committees.
 
On floor of the Senate this afternoon, Senator Williams delivered a rousing speech, suggesting that rather than attach meaningless amendments, that would serve to cripple SB 161, that the Senate table the issue for further review and commit to passing a stronger version of the bill in the 2010 Session.  The Senate erupted in a standing ovation of support. 
 
“While passing Ava’s Law to provide families with immediate relief and children with effective coverage this year would have been preferable, we are encouraged that the Georgia Legislature has committed to take this issue seriously and conduct a further review to solve a very real problem that families all over this nation are forced to deal with on a daily basis with regard to the medical care and treatment of their children with autism,” stated Elizabeth Emken, VP of Government Relations for Autism Speaks.  “We greatly appreciate the leadership demonstrated by Senator Williams, as well as Senator Johnny Grant, the author of Ava’s Law.”

The intent of Ava’s Law is to require private health insurance companies to provide coverage for medically necessary, evidence-based treatments and therapies for children with autism as prescribed by their treating physician, including coverage for applied behavioral analysis therapy. To date, eight states – Arizona, Florida, Louisiana, Illinois, Indiana, Pennsylvania, South Carolina and Texas -- have enacted autism insurance legislative reform that requires insurers to cover ABA therapies, which typically cost upward of $50,000 a year – a cost well beyond the means of most families.
 
“I would like to thank advocates statewide for taking the time to work so diligently on Ava’s Law. I especially thank advocates for making calls over the last few days to Lt. Governor Casey Cagle, who listened to our pleas and released the bill out of the Rules Committee, sending it to the Senate floor for a vote,” said Bill Jones, Georgia Chapter Advocacy Co-Chair for Autism Speaks.  “Autism advocates in Georgia succeeded in bringing the issue of autism insurance reform to the forefront and to the attention of members of the Georgia State Assembly.  Rest assured that we will be back next session with even more voices to get Ava’s Law passed!”

Autism Speaks thanks the primary co-sponsors of SB 161 for championing the bill at every turn which include: Senator Johnny Grant (25th District – Milledgeville), Senator Tommie Williams (19th District – Lyons), Senator Eric Johnson (1st District – Savannah), Senator Don Thomas (5h District – Dalton), Senator Bill Cowsert (46th District – Athens) and Senator Dan Weber (40th District – Dunwoody).



Comments:
Anonymous @ 5/7/2009 5:14:09 AM 
I fight for this bill not so much for Cecile b/c she will be okay. I fight for those who can't afford the early intervention therapies. Those whose children can't talk or give their parents affection. It is so devastating to find out that your child has Autism but it has to be even more devastating to know you can't afford to give your child the needed therapies for recovery. Most therapies are out of pocket expenses b/c insurance will not pay for it. Alright I am off my soap box. Thank you for letting me say the above.
Anonymous @ 3/14/2009 12:20:11 PM 
I am thankful for the people who work on nationwide volunteer advocates for autism who dare to fight for our children. Keeping us informed on what is going on but the truth of the matter is another year,another struggle but we have not come this far to give up on this important cause. So, I am not just speaking for my stepson I will never stop fighting for a solution. Even if it does not start with my son but it will start with someone and if we are creating a better future for our children then continue to fight, call , and petition. The best fights are long and hard and they definetly dont come easy. So thank you for fighting and continue to keep us informed.
Anonymous @ 3/14/2009 8:44:53 AM 
I applaud Senator Williams and the few who were not afraid to stand with him in support of the bill. However, most of the children with autism will now wait at least another year for the treatments they so desperately need. What is it going to take for our elected officials to grasp the importance of this issue?

There is no reanson to form a committee when they had all the evidence necessary to pass this bill. It is just an excuse for the Georgia General Assembly to avoid a vote. UNBELIEVABLE!!!!!
Anonymous @ 3/14/2009 12:38:46 AM 
How long must we continue to wait?
Anonymous @ 3/14/2009 12:37:36 AM 
We cannot afford to keep waiting to recover our children. They need our help RIGHT NOW. They are in space somewhere and we need them here to be focused on their surroundings and interacting with othe people. This is a farce. I'd like to know who is against this. These ADULTS are discriminating against the very children they poisoned.
Anonymous @ 3/13/2009 9:04:02 PM 
By the way, who were the OPPONENTS of the bill? If you know any, please post them here. Since there was no vote, it's impossible to tell who's who pro or con or indifferent.
Anonymous @ 3/13/2009 9:00:01 PM 
Carefully watch who's doing what in the Senate. Has Lt. Gov. Cagle, his banking buddies, and a few of his state-paid attorney friends personally profited from the suppression of autism diagnoses in the past? Do they have at least one secret key to the very CAUSE of autism in their own community? Should you follow the money and paper trail in his quest for the Governor's Office? You bet. An ally? Or part of the CAUSE? The Huffington Post and their never-quit autism reporters may end up following this one....
Anonymous @ 3/13/2009 2:57:00 PM 
I, too, wish this would have passed this year. However, I want to applaud the tireless efforts of Bill Jones. He worked very hard to coordinate efforts for phone calls, emails and visits to the Capitol by autism advocates across the state. Thank you, Mr. Jones!
Anonymous @ 3/13/2009 2:14:14 PM 
I could not agree more with the comment above - This is not a victory just another excuse to form a "committee"
Anonymous @ 3/13/2009 1:45:47 PM 
The vote was to table the bill - very safe for the legislators who, while smpathetic, so not want to upset the opponents of the bill.

I cannot, repeat, applaud failure - they won, we didn't.
Anonymous @ 3/13/2009 1:36:49 PM 
I don't know why we are "applauding" the Georgia General Assembly. The author of the SB 161 withdrew the bill from consideration - my information is that it did not go to the Senate floor for a vote. By withdrawing the bill, the sponsor simply let the Assembly leadership off the hook. There is strong opposition to SB 161 and the Assembly caved in to the opposition.

With all the evidence available from other states, is there a need to further "study" the need for insurance coverage? I cannot applaud failure.

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