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Autism Speaks Endorses Ohio Autism Insurance Reform Legislation

House Bill 8 Would End Health Care Discrimination Against Children with Autism by Requiring Coverage of Diagnosis and Treatment
 
Columbus, OH (February 19, 2009) – Autism Speaks, the nation’s largest autism advocacy organization, today announced its support for House Bill 8, the autism insurance reform bill.  The legislation would require private health insurance companies to cover the screening, diagnosis, testing and treatment of autism spectrum disorder (ASD).
 
Sponsored in the Ohio State House of Representatives by State Representative Ted Celeste (D-24) and Representative Nancy Garland (D-20), HB 8 includes coverage of Applied Behavior Analysis (ABA), an evidence-based, medically-necessary autism therapy.

“We applaud and thank Representatives Celeste and Garland for their leadership on this issue of critical concern to thousands of Ohio families,” said Elizabeth Emken, Autism Speaks Vice President of Government Relations.  “Autism Speaks joins Ohio’s autism community in calling on the legislature to pass HB 8 and join the growing number of states that have ended healthcare discrimination against children with autism.”

Most states do not require private insurance companies to cover even essential autism treatments and services.  In the absence of coverage, families often pay as much as they can out-of-pocket for services that can cost upwards of $50,000 per year.  In the process, many risk their homes and the educations of their unaffected children – essentially mortgaging their entire futures.

Eight states – Arizona, Florida, Louisiana, Illinois, Indiana, Pennsylvania, South Carolina and Texas -- have enacted autism insurance reform legislation.  Several other state legislatures will vote on similar legislation during the current session.



Comments:
Anonymous @ 3/10/2009 8:38:58 PM 
While I am thrilled with this bill and the doors it will open for children, such as my son, I must agree with Ms. Stacey. There is a major flaw in discriminating against other types of successful therapies. Floortime/DIR therapies have been instrumental in the successes we have experienced with my son. ABA, while a valid method, was never a viable option for us. I think it is important to remember that there are other treatments out there that have been successful for many of us and we shouldn't be pigeon holed into a one size fits all plan. ABA might work for some, but not all. Please consider this! Erin Runkle, mother to Gavin age 4
Anonymous @ 2/25/2009 5:14:28 PM 
This law is a good step forward but has a huge bias and flaw that needs to be corrected. It does not include DIR or Floortime intensive behavioral therapy as a substitute for ABA. My son is a creative, interactive, thoughtful, empathic person because of Stanley Greenspan's method, a therapeutic model that is supported and funded in early intervention by the State of Massachusetts (thank Goodness). ABA can be overstimulating for some children and parents should be able to choose established methods of remediation that are suited to their children. (Not designed to fit someone's biases). Pilot studies have proven that Greenspan's method is highly effective and he is a renouned expert on autism. Let's be fair and open and recognize that ABA is not the only or even the best method for all children as we move forward to seek coverage.
Patricia Stacey, author of The Boy Who Loved Windows
Anonymous @ 2/20/2009 2:48:12 PM 
Outstanding bill!!!!
Anonymous @ 2/20/2009 3:40:16 AM 
Thanks Ohio. I fought and won for my son; but it took 6 years. The six most important years of his life. Autism intervention MUST begin immediately upon diagnosis. Because in 2000 no one even wanted to TALK about the diagnosis, let alone provide treatments, interventions or EDUCATION, I had to fight hard, spend $30,000 I didn't have, but it was worth the war. My son has full coverage and he is able to attend one of only a few specialized school programs where the foundation of education is ROOTED in the belief that treatment, intervention and education are ALL necessary for positive, lifelong OUTCOMES! Hooray for OHIO. I'm proud to be an autism active in Ohio and proud to have a health insurance system which recognizes the needs of the individual with this devastating diagnosis throughout their life span.

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